Today I had an idea (it happens sometimes, yep and it shocks me too!). It was prompted by reading something on the wall of a friend on her facebook page. What I didn’t know was just how much it would wrench at my heart. In our journeys we feel many times that we’re very much alone. We just want to yell and scream at 'something' for reasons we really don't understand. That’s why it’s so important to connect up with other families with babes on the spectrum. Even a virtual shoulder is so very much more important than you can ever imagine. Physical support, family and friends in your life are brilliant but if they don’t “live” it with you then it’s difficult at times to talk with them.



So, my idea, I’ve been blessed with knowing many different families with many different journeys but all with the one goal in life… to help their child/children to become the very best that they can be. Today, I asked them… If you could speak to autism 1 on 1 what would you say to it? While some, although small are very much to the point… they and others had me in tears because of how much love and hurt is in their hearts. As you read these, please remember that you aren’t alone… we’re right with you in our minds and in our hearts. Each day has struggles and sometimes the struggles seem to out do the wins but it’s the wins that make us keep fighting and push us to continue each day with our hearts in our mouths each time autism gets put aside for another, even the smallest of, achievements.



These are their replies:



Parent 1

Go back to where you came from!



Parent 2

Stop messing with my child and my family.



Parent 3

Why do you have to lock my beautiful little boy way deep down inside. I want him back and I don’t want you.



Parent 4

In an ideal way of thinking I would say a Dalai lama quote....acceptance is the key to peace.....with you my dear autism....I truly wish I could feel that way.....but in reality I would say....please stop traumatizing my daughter and her family....we have had enough now....we have no energy left....go lock yourself away never to be seen or heard of again. Just leave us alone.



Parent 5

Dear autism, can you please let me in on a secret, why must you lock my child away so she can't handle everyday life. Can you a least give me a hint on what parts in her brain need to be rewired again. How do I help my beautiful angels if you do not let me in on your secrets, why as a mum must I see therapists, paediatricians? Why as a mum must I research about foods she can have because it may or may not help her function a little better. Why as a mum does it cost so much for me to find a better way for my angels to cope... Please autism; unlock to me an answer that will help my angels be free.

Parent 6

Dear Autism, Why did you take our dreams away? Why did you give us this beautiful baby to enjoy? just to take her back into your world, I think you have had your fun now Autism; Its time to give our KIDS back, because if you are living/growing on our fear's and sadness you have won round 1,but I want you to KNOW!!!!! You will not take our kids anymore with out a fight, you will know longer make me feel weak, you will know longer see me cry, you will no longer take my dreams, you will only see us laugh louder , watch us getting stronger, you will see our love for our children grow more and more everyday, you will see us smile more, you will also see us dream higher that we can almost touch the moon, You made a mistake Autism to think we would just open a door for you!!!! You are now INVISIBLE.



Parent 7

Dear Autism; please let my son say even just one sentence to me so that I no longer have to dream about what his voice would sound like if he could talk. To hear his voice is my one and only wish. That is all.



Parent 8

Mr. autism its time you left this planet let all kids be happy healthy enjoy life replace the stress and heart ache with love and happiness let these children grow up and do all the normal things that young adults do even if its only short time l just love to have a normal household where everyone is happy not arguing just enjoying each others company l love to see my son be happy and have some friends and achieve his goals its not much Mr. autism so hop into a space ship go back to where you come from.



Parent 9

I don’t care who you think you are autism. She is my daughter. I’m her mother, not you. I own her, you don’t; she is MY daughter, not yours!

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Parent 10

Put all your cards on the table, no secrets, mystery or guessing games. Tell it to me like it is and lets get on with this life and relationship. Tell me the best you have to offer and how to tap into it. Let me in on what bothers you the most, calmly, quietly and succinctly. If we are to coexist, we must have an understanding of each other and cooperation on both sides in all possible ways. You tell me what I can do for you and the most effective way in which to do it. I know communication is not your strong suit, but I am willing to listen if you can be as clear as possible. Let me make the best of you for my child each and every day.

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